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Activity Report for the year 2009-10

Hearty welcome to you all. I am glad to present our annual report for the year 2009 -10 dealing with the events, activities and progress made during the past year.

The membership strength of our Chapter as on date is 674. Fifty four members have enrolled during this period. Our last AGM was held on 8th November 2009 at St.John’s Medical College & Hospital, Bangalore – 52. Financial reports were read out by Mr. K.V. Ramachandra and were approved by the members.

Periodical Executive Committee meetings were held for the period from Nov 09 to date.

We have issued

Factor VIII Factor IX FIBA Value
Current Year 4,43,495 Ius 97,300 Ius 46.46 lac
Free Issue   24,686 Ius 1500 Ius 2.95 lac
Previous Year 2,60,110 Ius 69,165 Ius Nil 28.48 Lac
Free Issue   30,691Ius 2.45 Lac

Physiotherapy treatment was availed by 200 members. We continue to reimburse conveyance charges for regular attendance to BPL patients.

I am very glad to inform you that this Year we have started a new project, ’Reviving Hope’ with Asha Seattle., USA. Under this project needy members are benefited by getting monthly financial support for medicine and education plus the Salary for our physiotherapist. We thank Asha Seattle for the donation of Rs 4, 90,567 for the year 2010

Open Clinic was held on 24.01.2010 at Govt. Secretariat Club, Cubbon Park, Bangalore. Dr. Cecil Ross, Dr. Sitalakshmi and Dr. Meera attended to the patients. There was also a press and media meet. This was mainly regarding creating awareness about the lack of medicine in the government hospitals. The news was covered in all major print media—Times of India, Deccan Herald, Indian Express and Kannada Prabha.

We celebrated World Hemophilia Day on 17.4.2010 for creating awareness and educating medical professionals. The program was held in two different venues.

A Role-Play on Hemophilia was conducted with the support of 1st year nursing students of St. Johns Medical College. The event was organized in the out patient department of SJMCH. The program was called “Awareness of Hemophilia from people to people”. There were more than 200 medical students, nurses and general public present. Dr. Cecil Ross, Dr. Fulton and Dr. Kurien of SJMCH shared their experiences in dealing with Hemophilia.

A Continued Medical Education on Hemophilia Care and other bleeding disorder was conducted at KC General Hospital with the support of Dr Vishwaradhya, the Medical Supdt. of the Hospital. The aim of the program was to enable the government doctors to identify, treat and manage hemophilia bleeds efficiently. This program was conducted by a team of doctors from St. Johns Medical College & Hospital (SJMCH) led by Dr. Cecil Ross.

30.04.2010 - Continuing Medical Program at St. John’s Medical College Hospital, Bangalore

Hemophilia Society Bangalore Chapter in association with Rajiv Gandhi University of Health Sciences and St. John’s Medical College, Bangalore organized a Continued Medical Education on "Hemophilia & other bleeding disorders" training program on 30th April 2010 at St John’s Medical College & Hospital. The CME was inaugurated by Hon’ble Minister for State Medical Education, Shri. Ramachandra Gowda and was presided by Rev Fr. Kalam, Associate Director, St. John’s Medical College Hospital, Bangalore.

The scientific session was conducted by Dr.Cecil Ross (Medical Advisor Hemophilia Society Bangalore Chapter) along with doctors Dr.Karuna Ramesh, Dr.Sita Lakshmi, Dr.Fulton and Dr.Kurien of St. Johns Medical College Hospital and Dr. Kanjaksha Ghosh, VP Medical, Hemophilia Federation India. About 120 members of the medical fraternity including Physicians, Pathologist & Lab technicians, from Public and Private Sector Hospitals through out the state, were participated in the program.

In the post lunch session viz "wet workshop" the participants were divided in to 2 groups for training on lab diagnosis of Hemophilia and other bleeding disorders and for open clinic for which they received training to examine and treat the persons with hemophilia.

Completion of the Bangalore Chapter website. Our Thanks to Skylur media co and our very special volunteers Mr Natarajan, Ms Sangeeta Natarajan and Mr Kiran with whose contribution the we have completed the website and which has been appreciated by whoever has visited it.

Sunfeast world 10K Run was held on 23.05.10 at Bangalore.

Bangalore Chapter has also participated in the event. It was a thrilling experience and a proud occasion to see the enthusiastic participants. We could make the public aware of the existence of the Society that cares for persons with hemophilia.

We organized a Youth Motivational Camp (South Zone) – Young Voices on Hemophilia in India on 27th June 2010 at Pride Vatika, Bangalore. Mr. Vishal.V. and Mr. Jayanth K Raju, Youth members from our Chapter, had participated in it.

During this year, we have assisted 3 of our members, Narsimaiya, Firdoz Khan and Parmesha with micro finance loans under the DRF scheme.(Denmark)

Ms. Sowmya Pratap an enthusiastic patron of our Society has done yeoman service for the cause of our members. She could garner 8 donors who contributed Rs.1.03lac and some of them continue to donate. Our heartfelt thanks to her.

Ms.Sowmya Pratap has also very kindly arranged for fund raising meeting at M/s Motorola on 3rd Nov 2010 .Apart from collecting Rs.8500/o by cash, we could get the undertaking of 30 members of the institution to contribute monthly .

Under the SOL Scheme 4 members are getting Rs 2000 per quarter towards medicine. Under the ONGC Scheme 26 members are getting support of Rs 1000 per quarter towards education.

Under the SAC program 3 members getting factor medicine support.

Manual for our Society is getting ready and will be completed.

I am glad to inform you that this year we have received donation of Rs.104311/-

I would like to emphasis the importance of timely attention and prompt treatment of the members whenever there is bleed or pain. This would save a lot of trouble and money and save lives.

Despite lack of govt. medicine no patient was denied any help from the society. We will continue with our efforts in future.

Our Thanks to auditor’s M/s Venkatachalam Iyer and co who has rendered service all these years free of charge.

We are grateful to the trustees of the Bhagawan Mahaveer Jain Hospital for giving the accommodation free of charge to the Hemophilia Society.

Last but not least, Mr. Balasubramanian, our admin manager, and Mr. Siju K Paul, our physiotherapist whose dedication, honesty and hard work the hemophilia society is always grateful for.

I also thank our President, Office bearers and committee members for their cooperation all through.
Ms Ranjana Ramchander

Click to download 2010 Accounts


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